TY - JOUR
T1 - Vaccinating Adolescents With Intellectual and Developmental Disability at School
T2 - An Opportunity to Promote Supported Decision Making
AU - Klinner, Christiane
AU - Young, Alexandra
AU - Strnadová, Iva
AU - O’Neill, Jenny
AU - Newman, Christy E.
AU - Wong, Horas
AU - Davies, Cristyn
AU - Vujovich-Dunn, Cassandra
AU - Skinner, S. Rachel
AU - Brogan, Deidre
AU - Kang, Melissa
AU - Danchin, Margie
AU - Guy, Rebecca
AU - Carter, Allison
N1 - Publisher Copyright:
© The Author(s) 2025.
PY - 2025
Y1 - 2025
N2 - Internationally, vaccination rates among adolescents with intellectual and developmental disability (IDD) are lower than those of the general population. Little research has addressed this issue. This study investigates the experiences of vaccinating adolescents with IDD in special education settings in Australia, with a focus on student engagement. Semistructured interviews and focus groups were undertaken with 50 stakeholders involved in the school vaccination program. Data was analyzed thematically using a framework approach. We identified five themes: lack of student engagement, practices discouraging engagement, practices fostering engagement, lack of vaccination protocol adjustments, and lack of disability-specific nurse training. Nurses’ limited knowledge and skills in engaging students with IDD can result in unethical practices, students feeling excluded from vaccination decisions, and students being traumatized by negative treatment experiences. Clinical protocols lack guidance and reasonable adjustments to provide inclusive vaccination services. Supported decision making could provide more inclusive school vaccinations, more positive vaccination experiences, and higher vaccination rates among adolescents with IDD.
AB - Internationally, vaccination rates among adolescents with intellectual and developmental disability (IDD) are lower than those of the general population. Little research has addressed this issue. This study investigates the experiences of vaccinating adolescents with IDD in special education settings in Australia, with a focus on student engagement. Semistructured interviews and focus groups were undertaken with 50 stakeholders involved in the school vaccination program. Data was analyzed thematically using a framework approach. We identified five themes: lack of student engagement, practices discouraging engagement, practices fostering engagement, lack of vaccination protocol adjustments, and lack of disability-specific nurse training. Nurses’ limited knowledge and skills in engaging students with IDD can result in unethical practices, students feeling excluded from vaccination decisions, and students being traumatized by negative treatment experiences. Clinical protocols lack guidance and reasonable adjustments to provide inclusive vaccination services. Supported decision making could provide more inclusive school vaccinations, more positive vaccination experiences, and higher vaccination rates among adolescents with IDD.
KW - Australia
KW - adolescents with intellectual and developmental disability
KW - assent
KW - person-centred care
KW - school nurses
KW - school vaccination
KW - special education
KW - student consent/assent
KW - student engagement
KW - supported decision making
UR - https://www.scopus.com/pages/publications/85216900486
U2 - 10.1177/10598405241312981
DO - 10.1177/10598405241312981
M3 - Article
AN - SCOPUS:85216900486
SN - 1059-8405
JO - Journal of School Nursing
JF - Journal of School Nursing
ER -