Understanding Mesothelioma: The Experiences and Care Needs of People with Mesothelioma and their Families

This practical text highlights the lived experience of mesothelioma. Following the patient journey and underpinned by the evidence, it explores what good care for mesothelioma looks like. Mesothelioma is complex in its aetiology, presentation, symptom burden and patient pathway. The public health context is shifting, as the way people are exposed to asbestos changes and there are new life-lengthening treatments available with many benefts but also challenges. This timely book provides the context for mesothelioma, what it is and why it occurs before profling a range of experiences across the patient pathway to highlight implications for care delivered by nurses and other health and social care practitioners. The second section of the book follows the patient pathway from diagnosis through to end-of-life care and bereavement, highlighting the lived experience and summarising the implications for practice. The fnal section of the book discusses aspects of the mesothelioma experience that are unique to the condition, including mental health impacts, and fnancial and legal implications. Presenting insights that will inform practice in a diverse range of felds, including health, social care and law, this book is an essential reference for all those working with people with mesothelioma and their families. It is also an important reference for those working in cancer care more generally and academics with an interest in the lived experience of health conditions.