Patient-reported outcomes to enhance person-centred HIV care

Meaghan Kall*, Fabienne Marcellin, Richard Harding, Jeffrey V. Lazarus, Patrizia Carrieri

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

95 Citations (Scopus)

Abstract

Quality of life has been proposed as the fourth 90 to complement the UNAIDS 90-90-90 targets to monitor the global HIV response, highlighting a need to address the holistic needs of people living with HIV beyond viral suppression. This proposal has instigated a wider discussion about the use of patient-reported outcomes (PROs) to improve the treatment and care of an ageing HIV population with increasing comorbidities and a disproportionate burden of social problems. PROs can provide a first-hand assessment of the impact of HIV treatment and care on patients' quality of life, including symptoms. The field of PRO measures is rapidly expanding but still no gold standard exists, raising concerns about tool selection. Challenges also remain in the collection, interpretation, and use of PRO data to improve the performance of the health system. An emerging concern is how to adapt PROs to different sociocultural and geographical settings.

Original languageEnglish
Pages (from-to)e59-e68
JournalThe Lancet HIV
Volume7
Issue number1
Early online date24 Nov 2019
DOIs
Publication statusPublished - 1 Jan 2020

Bibliographical note

Funding Information: JVL reports grants from the HIV Outcomes coalition during the writing of this Series paper, and grants, speaking and travel fees from AbbVie, Gilead Sciences, Merck Sharp & Dohme, Janssen, and CEPHEID, outside the submitted work. RH received speaking fees from Gilead Sciences. PC reports research grants from French National Agency for Research on AIDS, during the conduct of the study and grants from Merck Sharp & Dohme, outside the submitted work. All other authors declare no competing interests.

Open Access: No Open Access licence

Publisher Copyright: © 2019 Elsevier Ltd. All rights reserved.

Citation: Kall, Meaghan, et al. "Patient-reported outcomes to enhance person-centred HIV care." The lancet HIV 7.1 (2020): e59-e68.

DOI: https://doi.org/10.1016/S2352-3018(19)30345-5

Fingerprint

Dive into the research topics of 'Patient-reported outcomes to enhance person-centred HIV care'. Together they form a unique fingerprint.

Cite this